Conservative MP Graham Evans has said it is "unacceptable" that so many young people die from neuromuscular conditions, such as Duchennes muscular dystrophy.
Leading a Westminster Hall debate on 9 February 2011 on care for the conditions in the north west of England, he said it was time to introduce a neuromuscular curriculum into medical teaching.
Neuromuscular conditions cause severe weakening of the muscles, and occasionally breathing problems.
A review of specialist neuromuscular services in the north-west was completed in September 2010.
Around £13.6m has been spent on unplanned emergency admissions for neuromuscular conditions in the region.
Mr Evans said there were no NICE guidelines on neuromuscular care, meaning it was difficult to set standards.
Health Minister Paul Burstow said there was a need for more neuromuscular care co-ordinators.