I have had M.E. for one year now, my school have been very helpful (even though I do think they could use more information) and I get home-tutors when I am able to concentrate, I am not able to get out at all at the minute. I do agree that it is not well understood but most of my friends have been pretty good and doing their best to understand and cheer me up! I am very keen to get back to school when I am well again and have not been put-off by M.E.!
Joy, 13, Belfast

I think that it is stupid that children do not get help. I had ME 5 years ago. It was horrid. People should have help.
Molly, 15

I have had ME for the past 5 years, and had little help from GPs as none believed in it, but thanks to the Association Of Young people with ME. (AYME) my life has improved dramatically and I've been able to make new friends and I don't mind about losing all the old ones.
Juliet, 16, Clitheroe

My mum has ME and I wish that more would be done about it cos she keeps thinking its gone away when it comes back again.
Sophie, 11, St Albans

I have had ME for about 4 years and have had to do half days at school as I am constantly tired. I don't think that there is enough support for this kind of illness and not enough people are aware of what it really is.
Helen, 16, Haywards Heath

I suffer from ME/CFS, although only quite mildly, and there are lots of people worse off than me. It's very frustrating not being believed, and being patronised!
Becki, 13, Flitwick

As a sufferer I am very very glad that there is some sympathetic publicity of M.E. It's very tough, just trying to cope with teenage life with all these obstacles. Being too ill to go into school for a long time meant that my friendships became frayed. Because I was never there to defend myself, gossip circulated. When I finally did get to school after a while I was very intimidated. I became paranoid that people didn't accept my illness.
Morwenna, 14, London