Scott Fitzmaurice, 15, has been a patient at London's Great Ormond Street for years.
He explained why it's really important to get access to information about medical conditions that you might have.
"When I was younger there was no information available, nobody really told me what was happening. You don't know that you can ask questions," he said.
The website is split up into separate kids and teens sections, and you can check it out by going to Web Links at the top right of this page.