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Last Updated: Saturday, 20 November, 2004, 09:58 GMT
Legal battle baby's funeral held
Luke Winston-Jones in hospital
Luke was born in January in Bangor's Ysbyty Gwynedd
The funeral of Luke Winston-Jones, the baby who was at the centre of a High Court case, is due to take place on Anglesey.

Luke, who was born with a rare terminal genetic disorder, died on 12 November at Alder Hey Hospital, Liverpool.

Last month the court made a landmark ruling over the level of care he could receive if his condition worsened.

Luke's family want the funeral service at St Beulo's Church, Aberffraw, to be a celebration of his short life.

His was born with the rare genetic condition called Edward's Syndrome, which few babies survive beyong a year.

Luke had serious heart and breathing problems, but his mother, Ruth Winston-Jones disagreed with Alder Hey Hospital over what treatment her son should receive.

Ruth and Luke Winston-Jones
Ruth Winston-Jones took Luke's case to the High Court

The High Court case to decide the level of care last month followed a similar ruling on another seriously-ill baby, Charlotte Wyatt from Portsmouth.

In Luke's case, the judge ruled that doctors could withhold mechanical ventilation, but, in a last minute concession, decided that he could still receive cardiac massage.

Luke died at Aldey Hey on 12 November after his condition "significantly deteriorated" and "extensive resuscitation" had proved unsuccessful.

His family had immediately called for a public inquiry, and the Liverpool hospital responded by saying it "refutes allegations that Luke did not receive the best care and attention at Alder Hey."

Bright colours

An inquest opened in Liverpool on Tuesday and was adjourned until 10 January.

Coroner Andre Rebello said it was not normal to hold an inquest for a natural death, as in Luke's case, but said issues raised by Luke's family needed answers.

On Monday, Ms Ruth Winston-Jones, who has another son and daughter, said she wanted Luke's funeral to be "a celebration of his life".

Instead of wearing black, she wanted mourners to wear bright colours, which she said her baby loved,

"Anyone who loved Luke, who followed his story and respected and believed in Luke can come and celebrate Luke's life," said Ms Winston-Jones.




BBC NEWS: VIDEO AND AUDIO
Why the case went to court



SEE ALSO:
Inquest held into baby death
16 Nov 04 |  North West Wales
Public welcome at baby's funeral
15 Nov 04 |  North West Wales
Baby Luke loses fight for life
12 Nov 04 |  North West Wales
Q&A: Luke Winston-Jones' case
22 Oct 04 |  Health


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