A health trust has apologised to patients after they were told their pain relief treatment was to stop.
Garyn Price has been having Botox injections for 12 months
Gwent NHS Trust patients receiving botox injections to relax muscle spasms were told it was being halted.
Among them was Garyn Price, 10, who has suffered two strokes, who has been having the injections for a year.
The trust has apologised to patients. It said the change was due to a review of services, but that existing patients would continue with treatment.
But there are fears new patients will not be offered the treatment which helps relax painful muscle spasms.
Garyn is one of 650 children a year in Britain to suffer a stroke.
For the last 12 months he has been having botox injections in his upper body and legs.
The toxin, which is often used in cosmetic surgery to treat wrinkles, stops his muscles going into spasm, reducing pain and increasing mobility.
But when he went for his last session of injections he was told the treatment was being stopped.
Julie Price said the treatment helped her son greatly
His mother Julie Price said: "The difference is amazing.
"It basically paralyses the muscles that are normally in spasm so it gives him a little more mobility and it helps enormously with the pain.
"I can't believe they would take this away from a 10-year-old. We are devastated to think Garyn couldn't continue with the botox injections.
"This is the only pain relief he gets and it helps him greatly.
"I wouldn't put him through it if it didn't benefit him, but it does - it's a little bit of discomfort maybe three or four times a year, but the benefit is enormous."
She said Garyn would suffer if the injections were stopped.
"We'll be back where we started, Garyn would be in the same amount of pain and I can't allow that to happen.
"We do feel as if we've had to fight for everything for Garyn which can be a bit wearing because all we want to do is concentrate on his recovery.
Garyn Price has suffered two strokes
"If we can go back [to having the injections] we would be very happy but we'd also be very annoyed that we've been put through this.
"Garyn has enough to worry about, we have had enough to worry about, we shouldn't have had to go through this.
"And if it is only old patients, what about the new ones?"
Gwent NHS Trust issued an apology to the family and other patients affected.
"We apologise for the confusion and delay in clarifying the situation with patients," said a trust spokesman.
The trust blamed "a review of anaesthetic services" for the confusion but said "patients already receiving botox treatment will continue to get that service".
The trust said it will consider other forms of pain relief in the future.
Garyn's treatment will resume in July. He said it was an effective way of combating the pain he feels from the muscle spasms he experiences.
"It makes it all relaxed. Before my arm was back all the time, but now I can swing it.
"And it stops the pain a lot."