[an error occurred while processing this directive]
BBC News
watch One-Minute World News
Last Updated: Sunday, 8 October 2006, 13:06 GMT 14:06 UK
Transplant brothers' charity walk
The Hartley's walk
The boys walked along the River Test from Mottisfont to Romsey
Two of four brothers who all have one of the world's rarest genetic disorders have made a six-mile charity walk.

Nathan Hartley, 12, and Daniel, 10, marked life-saving bone marrow transplants by making the walk along the River Test for the XLP trust.

The charity, set up by their parents, sponsors research on X-linked Lymphoproliferative Disease (XLP), which affects the boys from Romsey.

Only about 100 males have the immune system disorder worldwide.

Sufferers are not expected to live beyond their teens.

Allison and David Hartley were told in 2003 that their sons had the disorder and bone marrow transplants were the only cure.

Nathan Hartley
I've got plasters with me in case I get blisters
Nathan Hartley, 12
After a campaign through the Anthony Nolan trust, matches where found to all four boys' bone marrow.

At the start of the walk, Nathan, who planned to raise 1,000, said: I'm feeling a bit nervous, but I'm very fit and I think I'll do well.

"I'm feeling fine about it because I've got plasters with me in case I get blisters."

The three eldest boys have all had transplants at Great Ormond Street hospital with Luke, six, due to undergo a transplant operation early next year.

'More caring attitude'

Joshua was unable to take part in the sponsored walk as he has joint problems following his transplant.

Mr Hartley, who said his sons have more caring attitudes because of their experience, said: "Our four sons have all found bone marrow donors but only about 30% of kids with XLP find that.

"We've set the charity up to fund research that will hopefully take us further along the lines to fund other cures.

"These two boys have done fantastically, the fact they're going to walk six miles after a bone marrow transplant shows the success you can have as a result of this treatment."

The boys walked along the River Test from Mottisfont to Romsey.




SEE ALSO
Transplant boy home for Christmas
23 Dec 05 |  Hampshire
Third brother undergoes surgery
24 Oct 05 |  Hampshire
Transplant father hopes for cure
13 Sep 05 |  Hampshire
Transplant brother's charity walk
22 May 05 |  Hampshire
Transplant brother marks birthday
22 Jan 05 |  Hampshire
Transplant brother back to school
19 Jan 05 |  Hampshire

RELATED INTERNET LINKS
The BBC is not responsible for the content of external internet sites



FEATURES, VIEWS, ANALYSIS
Has China's housing bubble burst?
How the world's oldest clove tree defied an empire
Why Royal Ballet principal Sergei Polunin quit

PRODUCTS & SERVICES

Americas Africa Europe Middle East South Asia Asia Pacific