A Devon mother whose teenage daughter died from the brain disease variant CJD (vCJD) six years ago is still waiting for compensation.
The exact number of vCJD cases is uncertain
The government agreed to set up a compensation scheme in October 2000, but Annie McVey says the process is smothered in red tape.
Mrs McVey, of Kentisbury Ford, near Barnstaple, has organised a conference this week for the families of victims.
Fifteen-year-old Claire died in January 2000 from the human form of BSE.
The compensation scheme is operated by the vCJD Trust, which says the total number of cases is uncertain.
It says the government has committed the sum of £67.5 million for the first 250 cases and it will review the compensation scheme if this number is exceeded.
Mrs McVey said no amount of money would ever compensate for the loss of her daughter, but she said a principle was at stake and compensation pay-outs would help prevent mistakes happening again.
The conference, which is being held in Exeter on Thursday, will allow families to share their experiences and try to find a way forward.