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Monday, 17 December, 2001, 14:41 GMT
Should a life be created to save a life?
A couple trying to create a baby to save the life of their two-year-old son
have been given fresh hope by a change in the rules.
Raj and Shahana Hashmi feared that their son Zain would die from a rare blood disorder without a perfectly matched bone marrow transplant. However, there was no suitable donor in the family so his parents, who live in Leeds, campaigned for permission to "design" a baby by IVF who will provide the life-saving cells Zain needs. Now the Human Fertilisation and Embryology Authority (HFEA) has ruled that couples will be allowed to select test-tube baby embryos whose tissue matches that of a sick sibling. The HFEA has stressed that applications will be considered on a case-by-case basis, and subject to strict conditions. Have we gone a step too far? Do we risk creating children as a medical commodity? Could it ultimately lead to parents demanding genetically-engineered offspring with good looks, intelligence or sporting prowess?
This debate is now closed. Read your comments below. Your reaction:
If the first child is treated successfully but incurs further complications at a later date, will the second child not feel obligated to provide a spare kidney, part of his liver or undergo other invasive procedures? After all it will be a perfect match for his or her elder sibling.
At the moment donors choose to donate. Once you create people as donors then those people lose their right to choose.
The HFEA is staggeringly short-sighted in its decision.
Life or death. That seems to be the choice. What would you choose?
Kath, Bristol, England
Godfrey Bartlett, Brentwood, England
Obviously I'm a traditionalist. I believe that you bring a child into the world to love and care for and not for its spare parts. Silly me!
I wouldn't have a problem with this if it were a question of selecting one sperm and one egg to make one compatible embryo. What I do have a problem with is that the process will inevitably involve the creation of several embryos that will be unsuitable and will therefore be discarded. Human life should not be disposable in this way.
I think that in principle it is a good idea. It is a good way to help another of their children. I would draw the line when parents jump on this bandwagon to design the way their child would look. I find that more worrying than parents wanting to produce a child to help a child.
Jo, UK
The only cure for my eldest daughter's hemophagocytic lymphohistiocytosis was a bone marrow transplant and we were very lucky; an unrelated donor was found and she had her transplant at three months of age. She is now in excellent health, Anybody who does not agree with creating a baby to save another child's life has never sat in a hospital ward week after week just waiting to hear if a donor has been found. If I could genetically design a baby I would have as it would also ensure my future children were also free from histiocytosis because it is hereditary. I have had 3 more children and so far all are healthy but as no test is available for histiocytosis this ruling might just be my insurance policy
Anthony M, UK
Shaun, Teignmouth UK
My wife and I want a second child. If our daughter had such an illness that she needed a bone marrow transplant and we could not find a donor, we would do what the Hashmis are doing. I have also decided to join the bone marrow donor register and I hope many readers of this page will do the same. If people are against producing a child with a secondary purpose of giving bone marrow to his sibling, let them try to help that child and see if they are compatible.
P, UK
As long as the parents are thoroughly evaluated and can satisfy the authorities that they will love, care for and financially support the donor child, and that the medical treatment this child will support will not harm the child, then I have no problem with it. It's only when medical reasons are replaced by selfish reasons for selecting the genetic make-up of a child that objections should rightly occur.
Neil Galbraith, Scotland, UK
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