Europe South Asia Asia Pacific Americas Middle East Africa BBC Homepage World Service Education



Front Page

World

UK

UK Politics

Business

Sci/Tech

Health

Education

Sport

Entertainment

Talking Point
On Air
Feedback
Low Graphics
Help

Sunday, March 7, 1999 Published at 00:32 GMT


Health

Down's patients denied medical care

Down's syndrome children suffer discrimination

People with Down's syndrome are discriminated against by the medical profession, a report claims.


The BBC's June Kelly: Campaigners say sufferers deserve equal access
In some cases parents of Down's syndrome children have been invited to withhold life-saving treatment for a condition that is perfectly treatable.

People with Down's syndrome have also been denied routine treatment for common ailments such as hearing and sight problems.

The survey conducted by the Down's Syndrome Association (DSA) found that more than one in four people with the condition had been discriminated against by health professionals.

Responses from 1,509 parents in the association showed that 28% expressed a high level of dissatisfaction with the medical care their child had received.

The DSA claims that the survey reveals that many medical staff view people with Down's syndrome as second-class citizens and that these views often affect their treatment decisions.

Types of discrimination reported by survey respondents include:

  • Failure to treat Down's syndrome as individuals

  • Dismissing unrelated and treatable medical problems as being an inevitable part of the syndrome

  • Making comments that imply negative judgements about the value of the life of someone with Down's syndrome

  • Use of the word "Mongol" to describe a patient although the term has been excluded from medical usage for more than 20 years

In one case the first words a paediatrician said to a new mother after examining her baby were: "You have a Mongol."

Another consultant said about a child of two: "There is not point in working your guts out to help him because he will never be normal."

Worst fears realised

Carol Boys, DSA director, said: "Our worst fears have been realised in the results of this survey.

"It is clearly wrong that medical practitioners should contravene existing laws and guidelines in this way.

"Like anyone else, people with Down's syndrome are entitled to be treated with dignity and respect and that includes equal access to any medical attention they need."

The DSA makes a number of recommendations on the back of its report. These include:

  • An urgent need to implement existing government guidelines more quickly

  • Assurance to be given to parents who decline ante-natal testing or who test positive and continue with the pregnancy that they will be treated with the same respect and dignity as others

  • A call for more emphasis on the training of medical students with regard to learning disabilities

  • No person with Down's syndrome to be denied treatment on the grounds of their condition

  • Echocardograms to diagnose potential heart defects to be carried out on all babies with Down's syndrome

  • Wider implementation of routine checks for all health problems including those which are more common in people with Down's syndrome.





Advanced options | Search tips




Back to top | BBC News Home | BBC Homepage | ©


Health Contents

Background Briefings
Medical notes

Relevant Stories

06 Mar 99 | Education
Down's pupils 'need mainstream schools'

28 Jan 99 | Health
Abnormal births rise

18 Nov 98 | Health
Down's syndrome mother denies vanity

04 Nov 98 | Health
Simple test spots birth defects in weeks

30 Jul 98 | Health
Ultrasound boosts Down's detection

03 Jul 98 | Health
Safe blood test for Down's Syndrome under development

02 Jun 98 | Latest News
Down's babies denied life-saving operations





Internet Links


Down's Syndrome Association

Down's syndrome

Down's syndrome information


The BBC is not responsible for the content of external internet sites.




In this section

Disability in depth

Spotlight: Bristol inquiry

Antibiotics: A fading wonder

Mental health: An overview

Alternative medicine: A growth industry

The meningitis files

Long-term care: A special report

Aids up close

From cradle to grave

NHS reforms: A guide

NHS Performance 1999

From Special Report
NHS in crisis: Special report

British Medical Association conference '99

Royal College of Nursing conference '99