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Thursday, November 5, 1998 Published at 00:24 GMT Sci/Tech Move to regulate genetic testing ![]() Simple tests can check for faulty genes The government has set up an independent panel of experts to control the way insurance companies use the results of genetic tests.
The panel will now scientifically approve genetic results before insurers can make use of them. "What we are seeking to do with the new regulations is to make certain that those tests are fair, said Science minister Lord David Sainsbury "At the moment it's not a problem. What we want to make certain is that it doesn't become a problem in the future." Expertise The government announcement is a response to a report issued at the end of last year by its advisory body on genetics, the Human Genetics Advisory Commission (HGAC).
The HGAC was concerned that insurance companies did not have the expertise to interpret the tests. The HGAC and the insurance industry will now work together to set up the new evaluation panel as part of the government's existing Advisory Committee on Genetic Testing (ACGT) Insurability The panel will decide if a particular test provides a sound and accurate basis on which insurance companies can make decisions about people's insurability.
In answer to a HGAC request, the government is also considering how to strengthen the appeals procedure for people who believe that their genetic information has been used inappropriately or misinterpreted by the insurance industry. "Our objective is to put in place a robust system that will meet both the needs of consumers and the insurance industry; and which will also be responsive to developments in genetic science in the future," said Lord Sainsbury. Participate Vic Rance, a spokesman for the Association of British Insurers, said the use of genetic information by member companies was limited.
"We've taken steps ourselves. We've established a code of practice, we take the advice of a genetics advisor, we've limited it to a very small number of genetic conditions, and now it will become something independent - and we're very happy with that." |
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